Survey of 1,100 gout patients shows high unmet need and low expectations of treatment
A voice for gout patients
Gout can develop in people who have high levels of uric acid in their blood when the acid forms needle-like crystals in a joint. This can make the joints swell up and feel tender or hot, and also causes sudden and severe episodes of pain (known as flares). Around 2.5 percent of people in Europe are affected by gout – and it’s becoming increasingly common. Gout is treatable and can be effectively managed in a majority of patients. There is limited information available about the impact of gout on patients, and more generally on society. For this reason, Grünenthal recently joined forces with partners from patient organisations, across academia and industry to gain deeper insights into patients’ experiences of this condition and to develop recommendations for how to improve management of gout.
Perhaps the most striking outcome of this survey is that eight out of 10 patients claim they are satisfied with their current treatment – even though the words they most commonly associate with gout are inconvenience, agony and frustration. 10% of patients report that they or one of their family members lost a job or retired due to their gout. Many gout patients hide their disease or feel embarrassed about discussing their condition with a doctor. Instead, this study shows that they suffer in silence. As a result, there is a clear need for action to provide patients and healthcare professionals better education about the causes of gout, as well as effective diagnosis and monitoring.